Version 1
: Received: 1 May 2024 / Approved: 2 May 2024 / Online: 2 May 2024 (09:47:55 CEST)
How to cite:
Vincent, R. E.; Ashworth, R.; Donaldson, I.; Hayden, J.; King, G.; Maddocks, C.; Oliver, K.; Robertson, M.; Russ, T. C.; Wilkinson, H. Volunteering as Meaningful Activity for People Living with Young Onset Dementia: A Thematic ‘Co-Analysis’. Preprints2024, 2024050114. https://doi.org/10.20944/preprints202405.0114.v1
Vincent, R. E.; Ashworth, R.; Donaldson, I.; Hayden, J.; King, G.; Maddocks, C.; Oliver, K.; Robertson, M.; Russ, T. C.; Wilkinson, H. Volunteering as Meaningful Activity for People Living with Young Onset Dementia: A Thematic ‘Co-Analysis’. Preprints 2024, 2024050114. https://doi.org/10.20944/preprints202405.0114.v1
Vincent, R. E.; Ashworth, R.; Donaldson, I.; Hayden, J.; King, G.; Maddocks, C.; Oliver, K.; Robertson, M.; Russ, T. C.; Wilkinson, H. Volunteering as Meaningful Activity for People Living with Young Onset Dementia: A Thematic ‘Co-Analysis’. Preprints2024, 2024050114. https://doi.org/10.20944/preprints202405.0114.v1
APA Style
Vincent, R. E., Ashworth, R., Donaldson, I., Hayden, J., King, G., Maddocks, C., Oliver, K., Robertson, M., Russ, T. C., & Wilkinson, H. (2024). Volunteering as Meaningful Activity for People Living with Young Onset Dementia: A Thematic ‘Co-Analysis’. Preprints. https://doi.org/10.20944/preprints202405.0114.v1
Chicago/Turabian Style
Vincent, R. E., Tom C Russ and Heather Wilkinson. 2024 "Volunteering as Meaningful Activity for People Living with Young Onset Dementia: A Thematic ‘Co-Analysis’" Preprints. https://doi.org/10.20944/preprints202405.0114.v1
Abstract
Volunteering has many social, emotional and health benefits and could be an option for people with younger/early onset dementia to engage in stage/age-appropriate, personally meaningful activity within their local community. Audio data of people with young onset dementia discussing their volunteering experiences were taken from the Dementia Diaries and co-analysed. This study explored how people with dementia volunteer in the UK, the benefits and barriers, and how we can improve access to volunteering opportunities. The findings suggest that stigma is the overarching concept (or net) which influences people’s experiences of volunteering with dementia. Within the stigma net, three themes were developed that employed a lifespan approach to challenging said stigma: 1) Valuing the past, 2) Valuing the present and 3) Valuing the future, each with additional subthemes. This research contributes to the limited pool of literature that highlights the clear benefits of volunteering for people with young onset dementia, while also considering how dementia stigma can create practical and institutional barriers to accessing volunteering. Guidance is provided for how to deliver meaningful and accessible volunteering opportunities.
Copyright:
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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