@article{202407.1487, doi = {10.20944/preprints202407.1487.v1}, url = {https://doi.org/10.20944/preprints202407.1487.v1}, year = 2024, month = {July}, publisher = {Preprints}, author = {Stacey Quesada and Lauren Barringer and Marci Sontag and Yvonne Kellar-Guenther}, title = {Families’ Views on Accessing and Utilizing Appropriate Newborn Screening Long-Term Follow-up}, journal = {Preprints} }