5. Discussion
In this study, the quality of life of mental disorder caregivers and their correlation with depressive and anxious symptoms were examined. Additionally, the research questions RQs] that were posed in the study, are presented and indicated in this section. One hundred fifty-seven caregivers of individuals with mental disorders who visited the mental health department of a General Hospital participated in the study. Regarding the participant profile, 68.8% were female, 30.6% were male, and 0.6% identified as gender neutral. According to research [
45], women are twice as likely as males to fulfill this informal obligation for their family members. Other studies have found the same, attributing the responsibility of care primarily to women, daughters, and spouses, either because of their deep-seated belief that this role is theirs or because of the social environment.
A 2006 survey conducted by EUROFAM CARE discovered that 76% of primary caregivers for individuals with chronic diseases are female. In addition, 22% of these care recipients are spouses, and 60% are children/toddlers who typically reside in the same household. Most participants were between the ages of 46 and 55 (33.8%), while the youngest were between the ages of 2 and 25 (3.2%), reflecting the need for someone in the family to assume the responsibility of caring for a person with a mental disorder from a very young age, as this condition typically lasts decades. Some studies attribute a more significant burden to elderly caregivers, but another study [
46] find that younger caregivers are the most vulnerable.
According to the SF-12 questionnaire, the quality of life of caregivers of individuals with mental disorders was analyzed in the two main categories of physical/somatic health and mental health, along with their subcategories. For example, energy, serenity, and irritability/depression are factors that have an intermediate impact on the respondents' quality of life. [RQ1] In contrast, a substantial proportion of respondents assert that their life quality is unaffected by factors corresponding to their firm belief regarding the general state of health.
Based on similar research, it has been observed that caregivers of individuals with mental disorders may encounter notable impacts on their quality of life. These effects may manifest in diminished quality of life resulting from heightened psychological strain, compromised physical well-being, and socioeconomic difficulties. Numerous scholarly investigations have been conducted to assess the influence of caregiving on the overall well-being of caregivers, yielding consistent empirical evidence in support of this assertion. A study conducted amidst the COVID-19 pandemic revealed a decline in the physical and mental well-being of care providers. Another study [
47] also emphasized the significant impact of social isolation on various dimensions of caregivers' quality of life, such as heightened levels of depression and anxiety. Other researchers conducted a study [
48] that examined the relationship between the mental and physical health of advanced cancer patients and their family caregivers, revealing a potential interdependence between the two parties.
Furthermore, a research investigation carried out in England yielded compelling evidence indicating that the provision of care has a significant impact on the mental well-being of those who assume the caregiving role [
49]. The caregivers of individuals with mental illness experience a significant burden, which can have detrimental effects on both their quality of life and the well-being of those they care for [
50]. In summary, a multitude of studies have yielded empirical evidence that substantiates the assertion that the well-being of caregivers for individuals with mental disorders may be substantially impacted. Caregivers may encounter heightened psychological distress, physical health concerns, and socioeconomic difficulties. The reciprocal relationship between the mental and physical health of patients and caregivers has been observed in diverse contexts.
According to the findings of the present research, participants reported more concerns with mental health compared to physical health. [RQ1] In the same direction, the findings of Dimitropoulos (2022) demonstrated the highest correlation between the burden of stress and the quality of life for caregivers [
49,
51]. Caregivers of people with mental disorders appear to have poorer mental health than caretakers of people with chronic illnesses and non-carers. [RQ1]
Numerous studies have been conducted to investigate the implications of caregiving on the mental well-being of individuals, yielding consistent and compelling evidence supporting this assertion. Significant mental health burden was observed among caregivers of individuals diagnosed with mental disorders, such as schizophrenia and anorexia nervosa. The act of providing care was found to be linked with increased levels of depression, anxiety, and stress in caregivers [
52,
53]. Moreover, the ongoing COVID-19 pandemic has further intensified the mental health challenges faced by individuals who provide care to others. Research has indicated that individuals responsible for the care of those with mental disorders encountered mental health challenges amidst the pandemic [
54,
55]. The ongoing global pandemic has resulted in a notable escalation of stress, anxiety, and depression among individuals who provide care, thus underscoring the imperative for supplementary assistance and available resources. Caregivers may encounter heightened levels of stress, anxiety, and emotional burden concerning the ongoing provision of care and support. The responsibility of providing care can potentially contribute to the development of psychiatric disorders and have adverse effects on the overall well-being of individuals fulfilling the caregiving role.
According to the findings, the caregivers of persons with mental disorders who participated in this study have moderate stress and anxiety levels, with average values of 14.87 and 7.38, respectively [RQ3]. In terms of depression, the respondents have normal levels. In contrast, the findings of a study [
56] indicated that the highest proportion of caregivers of individuals with chronic diseases exhibited depressive symptoms due to high psychological strain. In terms of demographic characteristics, female caregivers exhibit higher levels of tension, anxiety, and depression symptomatology than male caregivers and younger caregivers than older ones. Moreover, those who have lost their partner, i.e., are widowed and are engaged in housework, experience more significant stress, anxiety, and depression than those who are married and employed, who experience fewer symptoms. [RQ2]
Numerous academic studies have explored the correlation between caregiving responsibilities and the subsequent impact on the mental well-being of caregivers, thereby furnishing substantiating evidence in favor of this assertion. Previous studies have indicated that individuals who provide care for those with mental disorders, such as schizophrenia, bipolar affective disorder, and substance use disorder, tend to exhibit elevated levels of depressive and anxiety symptoms [
57,
58,
59,
60]. The combination of the responsibility of providing care and the societal disapproval linked to specific mental disorders can lead to heightened depressive symptoms among individuals who assume the role of caregivers [
61]. According to a study [
62], caregivers of individuals with dementia were observed to exhibit psychopathological symptoms, such as depression and anxiety. There is a consistent association between the intensity of the care recipient's symptoms and elevated levels of caregiver strain and mental health symptoms, as indicated by multiple studies [
63,
64,
65]. Several research studies conducted in Sri Lanka and the Netherlands have revealed that individuals who provide care for individuals with mental disorders tend to experience elevated levels of depressive symptoms and heightened caregiver strain [
66,
67]. In a similar vein, research conducted in Brazil and Spain has revealed that caregivers of individuals with mental disorders demonstrated elevated levels of emotion expressed and experienced significant levels of stress [
68,
69].
In an attempt to determine whether the demographic characteristics of the participants influence the two domains of physical and mental health of caregivers of people with mental disorders, it was discovered that gender influences both domains of physical and mental health, with men reporting higher quality of life. [RQ2] The physical, mental, and general health status of informal female caregivers has been documented by a study [
70] and is consistent with the results of the current study. Informal care is detrimental to the health of caregivers, who are predominantly women. 27.2% of female informal caregivers report health issues. In addition, the same researchers [
70] have documented a correlation between a more significant perceived burden and poorer overall health in women, notably when social support is lacking.
Regarding age, it was discovered that participants of all ages experience superior physical health to mental health. Those with Greek citizenship also enjoy a superior quality of life than those without Greek citizenship. Regardless of the family circumstance, the level of physical health is consistently higher, indicating a higher quality of life.
Concerning the educational level of the caregivers of individuals with mental disorders, the graduates of University and college have a higher quality of life regarding the physical component. In comparison, the graduates of Secondary Education have a higher quality of life regarding the mental component. [RQ2] Researchers [
71] argued that caregivers with a higher level of education are associated with a more significant burden, attributing it to the increased demands and expectations they may place on themselves and others. In contrast, in another study, researchers [
72] and colleagues argue that the more education a caregiver has, the better equipped they are to handle the challenges of caregiving. In addition, a high level of education is associated with greater sociability, improved working conditions, higher pay, and increased family income, all of which contribute to a sense of security. [RQ2]
Regarding employment, those engaged in domestic work and earning up to €11,000 reported the highest quality of living in the physical domain. At the same time, retired caregivers enjoy a higher mental quality of life. In contrast, the perceived quality of life of informal caregivers of older citizens increased as their income increased, according to survey results. The DASS-21 self-administered questionnaire was used to evaluate the level of tension, anxiety, and depression. It was discovered that the factors that have a significant impact on the symptoms of stress, anxiety, and depression for caregivers of people with mental disorders are the inability to relax, the tendency to overreact to the situations they face, the feeling of discomfort, irritability, nervousness, and frustration. [RQ2]
The association between demographic factors of caregivers and mental health outcomes has also been documented in research examining caregivers of individuals with severe mental illness. Other researchers [
73] discovered a correlation between the female gender and younger age of caregivers and an increased likelihood of experiencing mental distress. Moreover, the burden experienced by caregivers can be influenced by various factors, including the nature of the caregiver-patient relationship and cultural and ethnic variables [
74]. The examination of the influence of demographic variables on the mental well-being of caregivers has also been explored within the framework of the COVID-19 pandemic. According to a study conducted by researchers [
75], it was observed that female caregivers and older children experienced a greater degree of adverse effects on their mental well-being amidst the pandemic. The influence of socioeconomic factors, specifically lower socioeconomic status, has been recognized as a contributing element to the increased vulnerability of caregiver mental health [
76].
The correlation between the two subscales of the SF-12 questionnaire (physical health and mental health) and the three categories of the DASS-21 questionnaire (stress, anxiety, and depression) was also examined. Regarding physical and mental health, it was discovered that there is a negative correlation with all three DASS-21 categories. [RQ3] This correlation is also supported by researchers [
56], who discovered that caregivers with depressive symptoms report substantially lower levels of both the physical and mental aspects of quality of life. Caregivers of persons with a mental disorder report low levels of mental health by recording symptoms of anxiety, stress, and depression in percentages ranging from 30 to 40 percent, particularly in the first years following the diagnosis of the disorder and in early psychoses [
51]. For caregivers of individuals with schizophrenia, this symptomatology occurs at a rate of 72-83% for stress [
77].
Consistent with the recent findings of researchers [
78], the coefficients for the variables stress, anxiety, and depression were found to have a negative sign, indicating that their eventual increase causes a decrease in the quality of life of caregivers of people with mental disorders. [RQ3] Several researchers have extensively examined the burden of informal caregivers due to the manifestation of anxiety symptoms, confirming the present study's findings. Caregivers must provide care for an adult relative with a mental disorder, but they need assistance to do so adequately. Providing informal caregivers of individuals with mental disorders with support services can improve the caregivers' physical and mental health and the patients' through better management.
The impact of caregivers on the quality of life of individuals with mental disorders is substantial. Numerous studies have examined the correlation between caregiving and the prevalence of clinical manifestations and symptoms among individuals providing care for individuals with mental disorders. Researchers [
79] conducted a comprehensive review and meta-analysis to investigate the extent of care responsibilities experienced by caregivers of Iranian individuals with chronic illnesses. The research revealed that individuals caring for patients with mental disorders, such as Alzheimer's, encountered a more significant caregiving burden. The responsibility of providing care was correlated with a heightened susceptibility to mental disorders among individuals fulfilling the role of caregivers [
79]. In England, a study was conducted by researchers [
80] to examine the prevalence of mental and physical illness among caregivers. According to same researchers [
80], the research revealed that individuals in the role of caregivers exhibited elevated levels of psychiatric symptomatology compared to those not in a caregiving role. According to the same research [
80], there is a correlation between the extent of caregiving and negative impacts on mental health, as well as an increase in psychiatric symptoms. The research conducted by researchers [
81] investigated the firsthand accounts of caregivers regarding individuals with severe mental disorders residing in rural areas of Ghana. According to this research [
81] caregivers encountered a range of difficulties, such as managing the indications and manifestations of mental disorders, shouldering emotional burdens, facing instances of violence, adapting to changing roles, confronting societal stigma, and navigating disrupted family dynamics [
82]. The researchers [
83] conducted a study to examine the caregiving responsibilities faced by families of individuals diagnosed with schizophrenia. According to the previews research [
83] caregivers encountered a noteworthy burden, resulting in detrimental effects on their mental well-being. Also, the same researchers [
84] proposed the implementation of family interventions and psychosocial support as potential strategies to effectively tackle the challenges mentioned above. The burden experienced by caregivers of individuals diagnosed with bipolar disorder was examined in a study conducted by researchers [
85]. According to this research [
85] a high prevalence of caregiver burden was revealed, which significantly impacted the well-being of both patients and caregivers. The researchers [
85] underscored the significance of acknowledging and addressing the burden experienced by caregivers within clinical and psychosocial interventions for individuals with bipolar disorder [
86].
In their study [
52], researchers investigated the extent of familial burden experienced by individuals providing care for patients diagnosed with schizophrenia. The research conducted by same researchers [
52] revealed a substantial occurrence of caregiver burden, which correlated with various socio-demographic factors. Researchers also in this study [
52] emphasized the necessity of implementing comprehensive interventions to alleviate the burden experienced by caregivers. In a qualitative investigation [
87] in Saudi Arabia, caregivers expressed encountering a range of difficulties, encompassing the management of indicators and manifestations of mental disorders, emotional strain, instances of violence, alterations in familial roles, societal stigma, and disruptions in family dynamics [
87]. The challenges mentioned above have played a role in exacerbating the difficulties individuals face in the role of caregivers [
87]. In general, these studies underscore caregiving's substantial influence on the overall well-being of individuals who care for individuals with mental disorders. Caregivers frequently encounter heightened psychiatric symptomatology, burden of care, and a range of challenges that have the potential to impact their mental well-being. The importance of addressing the caregiver burden and implementing suitable support and interventions cannot be overstated in terms of enhancing the welfare of caregivers and the standard of care delivered to individuals with mental disorders.
Numerous research studies have been conducted to explore this association, yielding consistently congruent findings. Other researchers [
88] conducted a meta-analysis wherein they examined the relationship between levels of depressive and anxiety symptoms in caregivers and their quality of life. The findings of the study indicated that caregivers with elevated levels of depressive and anxiety symptoms experienced a diminished quality of life. In another study [
89], it was discovered that caregivers who experienced elevated levels of anxiety and depression exhibited a diminished health-related quality of life. The study [
27] employed a cross-sectional design to examine the relationship between anxiety and depression levels in patient-caregiver dyads. The study's findings revealed a noteworthy correlation between these psychological symptoms, which were further linked to a diminished quality of life. The association between symptoms of depression and anxiety and the overall quality of life has been documented in specific populations of caregivers as well. An investigation [
90] revealed that caregivers of individuals diagnosed with schizophrenia who exhibited elevated levels of depressive symptoms also reported diminished family functioning and a reduced quality of life. The examination of the relationship between symptoms of depression and anxiety and the overall quality of life has also been explored within the framework of particular conditions. Another study [
91] revealed that caregivers of individuals with mental illness who exhibited elevated levels of depressive symptoms experienced diminished vitality and poorer overall health, both of which are integral aspects of quality of life. In a separate investigation [
92], it was discovered that the association between neuropsychiatric symptoms in individuals with dementia and caregiver mental health was mediated by caregiver burden and affiliate stigma. Furthermore, the impact on quality of life was subsequently influenced by the caregiver's mental health. Caregivers who experience higher levels of these symptoms tend to have a diminished quality of life [
93,
94,
95].
The present investigation endeavored to communicate with other researchers on a related topic. In this context, the possible absence of similar research on caregivers of individuals with a mental disorder prevented the comparison of the results with other findings of a similar nature in order to identify any similarities or differences in the sample's attitudes towards the subject of the study. It has also been a deficiency that comparable surveys of caregivers for chronically ill patients have utilized various research methods. In addition, the sample size is limited to a single institution in the country (General Institution), preventing the generalization of the results. Indirectly indicating the quality of life of caregivers of individuals with mental disorders, the results of this study play a crucial role in supporting development policies. All these findings highlight the importance of addressing the mental health needs of caregivers and providing appropriate support to improve their overall well-being and quality of life.
Notwithstanding its limitations, such as restricted sample size and confinement to a single institutional setting, which may impede its generalizability, the study provides valuable perspectives on comprehending the burden experienced by caregivers. The statement effectively communicates the importance of prioritizing the well-being of caregivers to enhance patient management. Moreover, the study promotes the need for ongoing research in this crucial domain, intending to implement focused approaches that directly influence the well-being of caregivers.
Caregivers of individuals with mental disorders are significantly burdened, and problems arise in all aspects of their lives. The high burden and its association with low quality of life have been documented by multiple studies, and the present study confirms this association. A burden that is anticipated to increase if we consider the factors that have considerably impacted families in recent years, such as the covid pandemic and the ongoing economic crisis in our country. It is regarded necessary to provide social and financial support and develop strategic treatment programs in order to better manage patients and improve their overall health [
96,
97,
98] .
Future work stemming from this research should aim to address the underlying causes of the stress, anxiety, and depression identified among caregivers, potentially by implementing and evaluating intervention programs focused on support and stress reduction. This could include more in-depth investigations examining how different types of support (psychological, financial, community-based, etc.) affect caregiver well-being [
99,
100,
101,
102,
103]. Moreover, a longitudinal perspective could provide insight on how caregiving affects mental health over time, and if and how this impact changes as the patient's condition evolves [
104,
105,
106,
107,
108,
109].
Additionally, research could be broadened to look at populations in various geographic and cultural contexts to account for differing health care systems, social support structures, and caregiving norms, which could all influence the quality of life and mental health of caregivers [
111,
112,
113,
114]. There is also the opportunity to use mixed methods approaches by incorporating qualitative research, which can provide a richer, more nuanced understanding of the caregivers' experiences [
115].