ARTICLE
|
doi:10.20944/preprints202106.0043.v1
Subject:
Medicine And Pharmacology,
Pediatrics, Perinatology And Child Health
Keywords:
newborn screening; research; long-term follow-up; NBSTRN; LPDR; RUSP. (3-10 keywords separated by semi colons)
Online: 1 June 2021 (15:10:29 CEST)
ARTICLE
|
doi:10.20944/preprints202403.1068.v1
Subject:
Public Health And Healthcare,
Public Health And Health Services
Keywords:
Newborn Screening, Ethical, Legal, Social Issues, ELSI, Research, Rare Disease,, NBSTRN, Privacy, Informed Consent.
Online: 19 March 2024 (10:22:27 CET)
ARTICLE
|
doi:10.20944/preprints202309.2039.v1
Subject:
Public Health And Healthcare,
Public Health And Health Services
Keywords:
newborn screening; genome sequencing; ethical; legal; social implications (ELSI); NBSTRN; public health; databases; online tools; Recommended Uniform Screening Panel (RUSP)
Online: 29 September 2023 (04:28:14 CEST)
ARTICLE
|
doi:10.20944/preprints202402.1612.v3
Subject:
Public Health And Health Services,
Public Health And Healthcare
Keywords:
newborn screening; public health; equity; long-term follow-up data
Online: 24 April 2024 (03:49:20 CEST)